ALS: Anyone's Life Story

In its world-leading effort to raise awareness of ALS (amyotrophic lateral sclerosis, or Lou Gehrig’s disease), MDA presents ALS: Anyone’s Life Story, an online series that will introduce you to five people — one for each week in May — who are living with ALS. We invite you to click on the images below to get to Anyone's Life Story.

Additionally, please see ALS: It’s My Story, Too, where you can share your own story of how ALS has affected you. Thank you for joining in MDA’s worldwide fight against ALS.
Juri Kameda
O.J. Brigance

ALS: It's My Story, Too

You can share your own story of how ALS has affected you.
Share your story.

  • Amanda
    My husband, Tony, was diagnosed with ALS in 2011 at the age of 33. Since then, he has stopped working, lost most of the use of his arms, and now has a hard time walking. He helps as much as he can...

  • Jennifer Finley
    When I was in middle school we found out my grandma had Lou Gehrig's disease. As a child I spent a lot of time with my grandparents, they would take me camping and l loved staying the night at their...

  • Larry Senn
    I am retired from the US ARMY in 1992. Then I went to work for Defense Contractors so I could continue to work close to the military. I was in Kuwait in 2010 and started to notice a change in my...
Read more stories

ALS Blogs

MDA/ALS Blogs cover life with ALS from the perspective of those who know it intimately: people with ALS, their family and friends, researchers, advocates, therapists, policymakers and others.

  • Puzzle Pieces Are Taking Shape in ALS Research

    Posted on Thu, 05/16/2013 - 10:55, By Jane Larkindale, Ph.D

    Speaking as a scientist with an interest in drug discovery, ALS is hard. Well, that’s probably pretty obvious, as if it were easy, we’d have a cure by now. When I first came into the field and whenever I thought about ALS, I felt stupid — I am missing something here!

  • We Need More of that A-Word

    Posted on Mon, 05/13/2013 - 14:09, By Jeff Lester

    You probably think I am about to write another awareness plea, but you would be wrong. Awareness is terrific, but isn’t it time to start turning from awareness and start expecting or, even better, demanding a much better A-word? ACTION!!!
Read more blogs