ALS: Anyone's Life Story

In its world-leading effort to raise awareness of ALS (amyotrophic lateral sclerosis, or Lou Gehrig’s disease), MDA presents ALS: Anyone’s Life Story, an online series that will introduce you to five people — one for each week in May — who are living with ALS. We invite you to click on the images below to get to Anyone's Life Story.

Additionally, please see ALS: It’s My Story, Too, where you can share your own story of how ALS has affected you. Thank you for joining in MDA’s worldwide fight against ALS.
Juri Kameda
O.J. Brigance

ALS: It's My Story, Too

You can share your own story of how ALS has affected you.
Share your story.
  • Hello dears My name is Liaquat Ali and I belong to Pakistan. 2 yrs before my sweet daughter that time she is 6 yrs old Dr declare DMD . That time I don't know about DMD .after I read and search on...
  • I was diagnosed with ALS in Feb.2013.It started with speech was slurred and my balance was off, that was in Oct.2012, went to the Dr. That diagnosis was a stroke. Then the falls and holding on to the...
  • My diagnosis is PLS (Primary Lateral Sclerosis) rather than ALS. I am writing here because so little is known about this affliction, sometimes referred to as a cousin to ALS. With PLS, only the...

ALS Blogs

MDA/ALS Blogs cover life with ALS from the perspective of those who know it intimately: people with ALS, their family and friends, researchers, advocates, therapists, policymakers and others.

  • Stem Cells and Hope in ALS: Part 2

    Posted on Wed, 05/29/2013 - 05:00, By Clive N. Svendsen, Ph.D., Geneviève Gowing, Ph.D.

    Replacing lost motor neurons would be the ultimate goal for ALS. Unfortunately, major obstacles — including survival of transplanted motor neurons, the generation of functional connections and long-distance projection (from the brain to the spinal cord, or the spinal cord to muscle) — need to be overcome before this approach can become feasible.

  • Keeping It Real

    Posted on Tue, 05/28/2013 - 14:35, By Patty Blake

    Having ALS — or any progressive illness — can be a lot like that proverbial camel. It plods along just fine, taking little note of the bits of straw being added to its pack until one day, that last straw that’s added to all the thousands of others does the impossible. It breaks that poor camel’s back. One little straw. One tiny added burden.