It's My Story, Too

  • Liaquat Ali

    Hello dears My name is Liaquat Ali and I belong to Pakistan. 2 yrs before my sweet daughter that time she is 6 yrs old Dr declare DMD . That time I don't know about DMD .after I read and search on...

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  • Nena

    I was diagnosed with ALS in Feb.2013.It started with speech was slurred and my balance was off, that was in Oct.2012, went to the Dr. That diagnosis was a stroke. Then the falls and holding on to the...

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  • Marial

    My diagnosis is PLS (Primary Lateral Sclerosis) rather than ALS. I am writing here because so little is known about this affliction, sometimes referred to as a cousin to ALS. With PLS, only the...

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  • Renea

    In October 2003, my younger sister, Robin was diagnosed with ALS. She passed away in less than 2 years in August of 2005 at the age of 49.   I was diagnosed in June 2011 with Bulbar ALS that starts...

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  • MOLLY

    It was a yearlong struggle being sent from one doctor to the next to find out what was wrong with me. My legs just did not seem to be working right and I was stumbling on my own feet. Finally in...

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  • Jim

    I am a 64-year old male; happily married for 46 years to my childhood sweetheart, and received the diagnosis of ALS on November 12, 2012. Although it was an emotional shock, my wonderful wife and I...

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  • Bob

    Some years ago, I began to fall over backward without warning, muscle spasms in my legs, atrophy of the muscles of my hands between my thumb and forefinger, and muscle twitching. At first, I thought...

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  • Paula

    My brother was diagnosed with ALS on January 5, 2010. He was 43-yrs-old at the time. His doctor gave him 3 - 5 years to live. The disease has progressed as predicted. He can use his fingers to...

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  • Lois

    I was diagnosed with ALS on March 14th 2012.... I had been having difficulty with my speech- some slurring and thought it certainly was caused by some medication that I was taking. It never...

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  • Pam

    I was a Social Worker at Vanderbilt CCC HIV/AIDS Clinic working with our female patients. In 2009 I was proudly holding a newborn HIV negative baby in our OB Clinic and suddenly felt as if I might...

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